Tuesday , January 19 2021

A baby boy receives treatment after being born without skin





  • Video kindly ABC13 Houston

    A baby born in Texas with a lack of skin surface is now in Houston to get a lifesaving remedy.

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SAN ANTONIO >> The doctors are working on a diagnosis and care plan for a baby boy who spent the first three months of his life in hospitals after being born without skin.

Jaabari Gray has been hospitalized since his birth on January 1st at the San Antonio Methodist Hospital, San Antonio Express News reported. With the disadvantage of most of his skin, except for the head, he was diagnosed with aplasia kites, a rare congenital shortness of skin.

After being transferred to the Houston Children's Hospital in Texas, specialists there temporarily diagnosed the epidermolysis boolean, a rarely genetic disorder of the connective tissue that leaves the skin extremely fragile and susceptible to blisters and tears, even from small friction or trauma.

Jabari now has skin on the head and some on the legs, but not on the hands or torso, so it is treated with frequent changes in dressing and fat to prevent infection, said his mother Priscilla Maldonado.

"They are really focused on maintaining the comfort right now," she said.

She said she and her husband, Marvin Gray, were subjected to genetic testing to confirm the diagnosis, since the disease is inherited.

"It can be two to three weeks before they have an answer. They do not want to treat my son for the wrong thing," Maldonado said.

She and Gray have two more children, aged 5 and 6, who are staying with Maldonado's mother, while the couple are watching over their baby.

"I've been able to hold it twice, but you have to be dressed in a cloak and strained. It's not skin skin, it's not the same," said Maldonado.

Doctors plan to perform a surgical intervention to reduce scar tissue that blends the jaw chin with the chest. His eyes are also merged from birth. Medicaid covers some medical expenses for the child, Maldonado said, and the family receives help from Taco Kabana, who employs two parents. A GoFundMe account is also set up.

Maldonado says doctors have not told how long the Jabari will need to stay in the hospital.

"Even if he withdraws, we do not know what the future is," said the mother. "We only pray every day. Every day is a blessing."


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