Nicolas Mendelssohn, Facebook's vice president for Europe, the Middle East and Africa, has launched a new charity to find a cure for the currently incurable blood cancer that she and hundreds of thousands of others have.
The Follicular Lymphoma Foundation (FLF) is the only charity dedicated solely to funding research that finds new treatments and treatments for follicular lymphoma while supporting patients and their families. It aims to raise $ 20m (£ 15.5m) in the first three years and hopes to find a cure for the disease over the next decade.
"Despite the hundreds of thousands of people living with follicular lymphoma, he has a very low profile and has relatively little investment in the disease," Mendelssohn said in a statement sent to Yahoo Finance UK.
"An average 20-year diagnosis survivor may look good on paper, but I'm in my 40s with a husband and four beautiful kids that I want to see grow up. It's not enough, and I'm not happy when we know that knowledge and technology is available that puts a cure for our understanding. "
In the winter of 2016, Mendelssohn received the devastating news that he had a curable blood cancer, follicular lymphoma.
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<p class = "Canvas Atomic Text Mb (1.0em) Mb (0) – sm Mt (0.8em) – sm" type = "text" content = "In a previous interview with & nbsp; Yahoo Finance in Great Britain;Global Change Agents with Brinze for Liana & nbsp;show, Mendelssohn said: "that weekend was no question – because I was a little uncertain, we didn't know what maybe it wasn't – the worst weekend in my life." "data-reagid =" 28 "> In an earlier interview with Yahoo Finance UK Global Change Agents with Brina Brinder The show, Mendelssohn said, "that weekend was no question – because I was a little uncertain, we didn't know what it might not be – the worst weekend in my life."
"I could go about 18 months with it before I needed treatment, which I did last summer, and I had to have chemotherapy and immunotherapy, which is not … I mean, it was terrible.
She noted that not all therapies and cancers are the same and that people may respond very differently to treatment. The married mother of four praised the support of her family and doctors.
"I was able to work through. I had great support and I was lucky and I had great doctors and now this is part of me. Will continue to follow. I feel good. I feel good, "Mendelssohn said.
<p class = "Canvas Atom Canvas Text Mb (1.0em) Mb (0) – sm Mt (0.8em) – sm" type = "text" content = "Late last year, Mandelson & nbsp;found that her cancer had gone into remissionLate last year, Mendelssohn revealed that her cancer had gone into remission.
Results in chemotherapy and immunotherapy post 6 million, I'm in remission! Here's me on my first and last day of treatment. Thanks to the amazing DRs and nurses who helped me through this. Thanks to family and friends and to everyone at work for the love and support you gave me. pic.twitter.com/qjrHgrwmv5
– nikola mendelsohn (@nicolamen) December 16, 2018
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Public awareness of follicular lymphoma is not great. Cancer is the most common low grade non-Hodgkin's lymphoma with approximately 2,000 people diagnosed with the disease each year in the UK alone.
About 20% of those diagnosed have a particularly acute form of follicular lymphoma with poor prognosis.
For 80%, the disease can mean living in chronic form for decades, with anxiety about not knowing when the disease will return and often a daily battle with triggering symptoms or long-term side effects of treatments.
"The amount of funding for follicular lymphoma research has decreased relatively over time and, despite advances, the medical and research community still do not understand follicular lymphoma as we would like, or well enough to identify drugs for all patients," he said. “. said Dr. Essessika Okosun, a clinical senior lecturer at the Barts Institute for Cancer and a hematologist consultant at St. Bartholomew "and scientific adviser to the Foundation.
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After launching the charity, Mandelson wanted to point out that, years later, she was co-administrator of the Facebook group and "we have people in their 20s and late teens diagnosed. For them, to be told that they may have 20 years to live their life around ongoing and exhausting treatment is unused. "
Nicky Greenhalgh, co-administrator of the group "Living With Follicular Lymphoma", added: "Living with a chronic and often invisible condition like follicular lymphoma can feel isolated and cancer is a frightening word.
"Because this form of cancer of the blood attracts so little attention, when I was diagnosed in 2014, there was little information available and certainly no network support to address."
“When I founded the Facebook group, living with Follicular Lymphoma. I was looking for a sense of belonging at a time when I felt very lost and alone. I never expected that she would become the community she had.
"I am very excited to see how the launch of the Follicular Lymphoma Foundation will energize our community and help them see each other."
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To raise awareness, the charity started with the support of celebrities such as singer Catherine Enenkins and actor Tracy Ullman in The & Partnership's ad campaign.
It features paintings by one of the world's most famous photographers – Rankin. His photography aims to "make the invisible, visible" by using purple makeup – similar to the color used to make the disease visible under a microscope – to expose the often invisible disease.
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The charity also created an Augmented Reality Augmented Reality Filter that allows users to "discover" the lymphatic system of people's faces, shown in glossy purple, developed by Myreality.design to help raise awareness of follicular lymphoma. and donations.
"As well as working to find critical new treatments and treatments for follicular lymphoma, the Foundation aims to raise awareness of this invisible disease and to help people find supportive communities, such as the Facebook group" Living With Follicular Lymphoma " "That Nicholas helps run." said Dr. Okosun.