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To save his parents, this diabetic teenager reduced his insulin



The high school official came up with an idea: he would cut his insulin by about a third.

Dylan, who has type 1 diabetes, should keep the blood sugar level between 130 and 150. After he began to rationalize his insulin, his levels jumped to 300.

He knew it was dangerous high, and in the back of his mind he worried that he could go into a diabetic coma. "I did not think well, but my parents work so much to give me what I need, and I do not want to put more financial stress on them, "Dillon said, now 18 years old.

From 2012 to 2016, the price of insulin in people with type 1 diabetes nearly doubled from $ 2,864 a year to $ 5,705, according to a study by the Institute for Health Expenses, a non-profit research institute this month.
Dylan Huli has reduced his insulin to reduce financial hardship for his parents, Jason and Mindy.

The price of Dillon's insulin was much higher. He was insured last year through the work of his father at a steel plant in Utah. When Dylan began to rationalize his insulin, the factory only shifted to a high-deductible insurance plan, which means that his parents would have to pay $ 5,000 from their own pocket before the insurance was released.

Under this new insurance, Hooleys had to pay $ 800 a month for Dillon's insulin, instead of $ 60 a month they paid according to their old plan.

Preoccupied with his family's financial troubles, Dillon's father, Jason Huli, was on the job and did not notice that the steel beam of 400 kilograms was to fall on his middle finger. He lost half of his finger and could only work on the light at the factory. With less hours, he earned $ 300 less a week.

Then Dillon secretly began to cut his insulin. His parents found out when he left for a regular doctor, and the doctor was shocked by the high levels of blood sugar levels.

Dillon's father then joined twice to get better health insurance. Now the family pays $ 160 a month for its insulin, which is better than $ 800 per month, but still a financial fight for the family of five. Dillon returns to take full insulin doses under your mother's watchful eye.

Mindie Hooley cries when she thinks about what her son did to help her parents.

"He is such an unselfish person," she said. "My heart broke, because you want to do everything to protect it, but instead it protects us."

Promises from MPs

Some people with diabetes did not survive the rise in the price of insulin.

In 2017, 22-year-old Antalya Vorsam from Cincinnati died when she could not afford her insulin.

Her mother, Antroneta Vorsham, testified on Tuesday at the Capitol Hill of the Committee for Oversight and Reform at Home. The Senate Committee also held a debate on rising drug prices Tuesday.

"This is unacceptable, and I intend to specifically reach the bottom of the rise in insulin," said Sen. Charles Grassley, chairman of the Senate Financial Supervisory Committee.

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The pharmaceutical industry says that insurance patients, such as Juli, do not have to pay a full price, as insulin makers give profound discounts to insurance companies. "These savings are often not shared with patients whose costs out of pocket continue to grow," said Holly Campel, a spokeswoman for Pharmaceutical Research and Producers of America.

A spokeswoman for the insurance industry, meanwhile, said it was not true. "Savings from discounts go straight to consumers," said Catherine Donaldson, a spokeswoman for America's Health Insurance Plans.

In December 2016, Sen. Bernie Sanders of Vermont and Illia Cummings of Maryland asked the Justice Department and the Federal Trade Commission to check whether insulin manufacturers had teamed up with drug prices.

In October, the Attorney General's Office in Minnesota filed a lawsuit against insulin makers over illegal pricing practices. A complaint filed by patients with diabetes in Massachusetts, accusing insulin manufacturers of price fixing, is underway in a federal court.

Dillon's future

While drugs and insurance companies point to one another's fingers, the Julians are still struggling to pay $ 160 a month for Insulin Dillon, along with other supplies, such as his test strips.

Payment for his insulin made it impossible for Dillon's parents to save enough to buy a glucose monitor that triggers the alarm if his blood sugar is too low while sleeping.

They know that he needs one. Last month, his mother reported to him while he was sleeping and saw that he did not look good. She woke him up and gave him a little honey, but he was so confused by his low blood sugar that instead of eating it, he swept the honey through his whole body.

Ambulance brought the emergency room, where it was stabilized and released.

After finishing high school last May, Dylan wanted to go to school to become a nurse or respiratory therapist. Instead, he got a job at a factory where his father worked to help him pay for his insulin and save it to school.

He looks at his two and a half months of insulin rationalization and knows he made the wrong choice – but it's a choice that brings love.

"My parents do so much to me, and it was hard to see them fighting financially," he said. "I felt helpless if I could not contribute."


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